Any patient, wherever he is, can
adopt a few rules that can meaningfully improve his physical and mental
condition. Although some of these rules may seem simple and trivial, they are
no less important than drugs or any kind or treatment. Their big advantage lies
in their power to keep the patient in a stable physical condition and in their
ability to avoid the struggle against a deterioration of the disease and
against the side-effects of the drugs. These rules don’t cost anything, but
their effectiveness makes them priceless. They are the best way of attuning us
to our body and its needs, and with their help we can learn how to succeed in
the struggle together with our body, rather than being at war with it.
Learning
the boundaries
In life we are expected to take
many decisions on a variety of issues, from finding employment, a place to
live, and choosing a partner, ordering a takeaway, or selecting a movie from a
DVD library. For the average (and healthy!) reader some of these decisions are
really important, and some are insignificant, but for Crohn’s and Colitis
patients, the most trivial of decisions can (and are likely to) have a direct
effect on the body and the mind. The tiniest decisions (where should we eat
lunch?) take on an extra significance, and therefore the bigger decisions
(where should we work?) become crucial. As patients we have full responsibility
for our health. We decide where we will eat, which medication to take, how many
hours we sleep, and how to make a living. In order to do this it’s important to
learn, as far as possible, the limitations placed on us by the disease in every
area of life, and we have to be careful not cross them. These limitations are
dynamic, and change from time to time in accordance with the state of our
health. Knowing one’s limitations is not a simple matter for anyone, but it’s
important to recognize that in our case it’s a way of fending off a
deterioration in the disease. Crossing the borders will exact a price, while
maintaining your framework will strengthen your health. Thus, the recommended
lifestyle for Crohn’s and Colitis patients includes lessening the pressure of
the workplace, and ensuring that you eat in clean and hygienic places,
something that would benefit the entire population. However, while a healthy
person who isn’t meticulous about this kind of lifestyle might bring increasing
damage on himself over many years, the Crohn’s or Colitis patient will pay an
immediate and painful price.
Attack
The reasons for an attack
The character of the disease and
its strength varies among patients and between various periods of time for any
given patient. Accordingly, each patient can experience an attack in a
different way. Having said that, the reasons for an extreme deterioration in
the disease are similar for all patients:
·
Consumption of low-quality food
which stimulates the inflammation directly.
·
Consumption of large
quantities of high-fiber food that is hard to digest in large quantities (like
fruit and vegetables). When food passes through the intestine its components
rub against the bowel walls, and if these components are rich in fiber they can
irritate sensitive areas of the bowel and cause pain that resembles that which
arises from scratching and rubbing an open wound.
·
Increased consumption of
food that requires difficult and extended digestion (like meat).
·
Consumption of large
amounts of food within short periods of time, something that burdens the system
and makes digestion difficult. What’s more, if the inflammation causes
narrowing in certain places in the bowel, food can accumulate and even get
stuck. There is no need to tell you that
this causes excruciating pain accompanied by noises and hardening of the
stomach.
·
If the inflammation is
repeated, it can form scars on the bowel wall, and the narrowing can become
permanent. If that happens the danger of attacks, even with the more careful
consumption of food, is increased.
·
In my personal experience,
mental stress over an extended period can raise the danger of an attack. Our
digestive system responds to our mental state, and when a person suffers from
continued stress, vulnerable points will react accordingly. With Crohn’s and
Colitis patients the vulnerable point is the inflammation of the bowel.
What to do during an attack
When a person breaks his arm, it is
splinted with plaster. The aim is to prevent certain movements that will hinder
the proper knitting together of the break. During an attack our situation can
be compared with that of the person who has broken his arm. Unlike that lucky
person, the digestive system cannot be splinted with plaster. So we are left
with the ability to endanger our digestive system. Therefore, in order to give
the bowel the chance to heal properly, we need to make sure we follow the
following rules:
·
Avoid any unnecessary
activity, we need to rest as much as possible, and to increase the amount of
sleep we get.
·
It’s important to consult
with a doctor as soon as you can, and to get help with medication as needed,
even if you think you know what the doctor will have to say.
·
Take advantage of
alternative treatments that you have had experience with and have found to be
effective.
·
It’s important to reduce
your food intake because food irritates the digestive system and fuels the
inflammation.
·
You should not eat food
that is difficult to digest like meat, vegetables and fried food.
·
It’s preferable to
substitute solid foods with liquids (preferably soups that are not made from
soup powder and that are seasoned as little as possible).
·
It’s important to increase
your water intake and to reduce your consumption of natural juices that are
rich in fiber. Also, drinking hot herbal infusions that have a calming effect
on the digestive system is recommended.
·
You should grant as much
rest to the digestive system and ease the digestive process as much as you can.
·
It is hugely important to
identify the attack early, and thus avoid any worsening of the situation. If it is not dealt with, the transition to a
worsening of the attack itself will increase the chances of future attacks
resulting from the damage done to the bowel.
·
On the one hand it is
important to allow the body to overcome the attack with its own resources. On
the other hand, when the situation is serious, and is accompanied by symptoms
such as a hard feeling in the stomach, excruciating pain, loud abdominal noises
and high temperature, you must see a doctor immediately. This applies also in
the case of pains and an inability to go to the bathroom – indications that
there could be a blockage in the bowel.
·
It is important to
emphasize that although the natural tendency is not to eat during an attack,
you should not take this too far. If the situation doesn’t improve after a
day’s rest, you should not continue with your partial fasting, and you should
be checked by a doctor. A situation in which the body lacks vitamins and
liquids is very dangerous, and does not allow the body to fight the attack.
·
Improvement in the severity
of the inflammation is gradual and slow. In the difficult periods it is very
easy to lose faith in your ability to return to a state of calm. It’s important
to remember, especially in those difficult moments that even the most stormy of
hurricanes is temporary, and that it’s always possible to improve the state of
your health in order to keep the next hurricane at bay. Every small step in the
right direction will bring you closer to that goal.
The full chapter is published in the book.
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